Media Partnership - Unlocking innovation and access for rare disease patients in Europe
To mark the opening of Rare Disease week, you’re invited to join this high-level policy debate, that will address the future of European collaboration on rare diseases, to reimagine and transform rare disease policy through access, awareness, and innovation.
We will bring together the European rare disease community to tackle this area of great unmet medical need, gain insights on the impact that policy decisions have on improving early diagnosis and the quality of lives of people affected by rare diseases.
Join us for this virtual series of sessions to examine the most critical issues in rare disease in Europe from different perspectives including policy-makers, innovators, academia, industry, medical professionals and patient organisations, who are leading the conversation around the future of European collaboration on rare diseases.
View the full programme and speaker line up here.
Ahead of the event, you can help raise awareness of the impact of rare diseases by joining our #Icare4rare campaign. Access the toolkit containing images with a statement about rare diseases and share it on your social media along with the hashtag #Icare4rare. Access your #Icare4rare Toolkit here.
With thanks from the organizers of this thought-provoking event, a Biogen initiative, in collaboration with Reuters Events and EU40.
Media partnership: EURACTIV
Organised by: Biogen, Reuters Events and EU40
Stella Kyriakides, European Commissioner for Health and Food Safety
Dolors Montserrat, Member of the European Parliament
Tomislav Sokol, Member of the European Parliament
Stelios Kympouropoulos, Member of the European Parliament
Prof. Andrew Ullmann, Member of the Bundestag
Johanna Friedl-Naderer, President Europe, Canada & Partner Markets, Biogen
Yann Le Cam, CEO, EURORDIS
Nathalie Moll, Director General, EFPIA
Bertalan Mesko, The Medical Futurist
Jana Popova, Patient Advocate, Bulgarian Association for Neuromuscular Disease (BAND)
Avril Daly, CEO, Retina International
Orla Hardiman, Professor of Neurology, Trinity Biomedical Sciences Institute
Sue Saville, Journalist, Independent
14:00 - 15:45 CET
+32 (0)2 788 36 92