Events Calendar

REGISTER HERE

To mark the opening of Rare Disease week, you’re invited to join this high-level policy debate, that will address the future of European collaboration on rare diseases, to reimagine and transform rare disease policy through access, awareness, and innovation.

We will bring together the European rare disease community to tackle this area of great unmet medical need, gain insights on the impact that policy decisions have on improving early diagnosis and the quality of lives of people affected by rare diseases.

Join us for this virtual series of sessions to examine the most critical issues in rare disease in Europe from different perspectives including policy-makers, innovators, academia, industry, medical professionals and patient organisations, who are leading the conversation around the future of European collaboration on rare diseases.

View the full programme and speaker line up here.

Ahead of the event, you can help raise awareness of the impact of rare diseases by joining our #Icare4rare campaign. Access the toolkit containing images with a statement about rare diseases and share it on your social media along with the hashtag #Icare4rare. Access your #Icare4rare Toolkit here.

With thanks from the organizers of this thought-provoking event, a Biogen initiative, in collaboration with Reuters Events and EU40.

REGISTER HERE

Media partnership: EURACTIV

Organised by: Biogen, Reuters Events and EU40