Media Partnership: An EU Ecosystem for Rare Diseases: The OD Expert Group proposals for navigating the challenges ahead

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Speakers

Yann Le Cam, CEO EURODIS

Victor Maertens, Government Affairs Director, EUCOPE

Matias Olsen, Public Affairs & Policy Manager, EUCOPE

Kaja Kantorska, Policy Officer Medicines: policy, authorisation and monitoring, DG SANTE

Dr. Jose Valverde, Policy Officer State of Health, European Semester, Health Technology Assessment, DG SANTE

Simon Bennett, Director Global Regulatory Policy EU, Biogen Idec

Prof. Maurizio Scarpa, Coordinator, ERN for Rare Hereditary Metabolic Diseases (MetabERN)

Michael Lyng Wolden, Global HEOR Director, Rare Disease Market Access, Novo Nordisk

Moderator

Christian Jervelund
Partner Copenhagen Economics

Schedule

10:00 – Registration of participants
10:30 - 11:30 – First Panel
Revision of the OMP Regulation: how can we ensure a resilient ecosystem in the EU?
11:30 - 11:45 – Coffee break and change of panels
11:45 - 12:30 – Second Panel
An EU HTA fit for Rare Diseases
12:30 - 13:00 – Networking reception